Here at the Janssen Health Policy Centre
our mission is to raise awareness on issues impacting healthcare policy, build
consensus through dialogue, and shape recommendations for future policies

Report-21/07/2014
Psoriasis White Paper

Psoriasis White Paper, which addresses the under-treatment of psoriasis in Europe and provides a framework for action, has been published today in the Journal of the European Academy of Dermatology and Venereology (JEADV). Authored by the European Expert Working Group for Healthcare in Psoriasis (EEWGHP) and financially supported by Janssen, this Psoriasis White Paper entitled ‘A framework for improving the quality of care for people with psoriasis’ is a key milestone for treatment in the disease area.

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Action Framework for Improved Standards of Psoriasis Care

A Psoriasis White Paper, which addresses the under-treatment of psoriasis in Europe and provides a framework for action, has been published today in the Journal of the European Academy of Dermatology and Venereology (JEADV). Authored by the European Expert Working Group for Healthcare in Psoriasis (EEWGHP) and financially supported by Janssen, this Psoriasis White Paper entitled ‘A framework for improving the quality of care for people with psoriasis’ is a key milestone for treatment in the disease area.

This is the first time an expert multidisciplinary group has come together to explore the state of psoriasis care across Europe, identify key issues and outline specific action points for the key stakeholders contributing to the care.

Ottfrid Hillmann, President of The European Umbrella Group for Psoriasis Movements (EUROPSO), and member of the EEWGHP said: “the Psoriasis White Paper is undeniably a great step forward in addressing much needed improvements in standards of psoriasis care across Europe”.

The origins of the Psoriasis White Paper

Through listening to key stakeholders, Janssen realised there was a need to standardise and improve psoriasis care across Europe.

 

A round-table meeting of multi-disciplinary participants was held in 2010 to discuss the current state of care in psoriasis across Europe. It involved clinicians, health policy makers, patient representatives and members of the Janssen EMEA Leadership team. The meeting laid the foundations for the beginning of a long-term partnership and identified key priority areas to establish high-quality care for people with psoriasis.

New Action Framework for Improved Standards of Psoriasis Care

A second round-table was held in March 2011 in Brussels. The EEWGHP was led by internationally renowned dermatologist Professor Matthias Augustin.

Two Taskforce groups were formed to discuss clinical management and health policy in psoriasis. The Psoriasis White Paper is the outcome of the group’s findings and discussions, and provides tangible goals and action points to key stakeholders involved in psoriasis care across Europe, focused on raising treatment aspirations and improving clinical outcomes.

New Action Framework for Improved Standards of Psoriasis Care

The recommendations to key stakeholders outlined in the Psoriasis White Paper:

  • Raise awareness of psoriasis as a serious medical condition that can greatly impact on a person’s quality of life and ensure that it is officially recognised as such. This will enable people with psoriasis receive quality and cost-effective healthcare that reduces the individual and wider economic impact of the disease
  • Promote the development, awareness and use of treatment guidelines
  • Raise awareness of assessment tools and their standard use, whilst identifying the potential for new assessment tools that can help to accurately assess disease severity and outcomes in specific situations and conditions
  • Define treatment goals and associated management strategies that improve standards for people with psoriasis and encourage patients to be involved in setting these
  • Drive data collection on the impact of earlier intervention with systemic therapies through national patient registries that contribute to European registry networks and proactively manage psoriasis through the provision of timely therapeutic monitoring and an multi disciplinary team approach to ongoing care
  • Drive patient advocacy group engagement with guideline and policy making parties so that the patient perspective is given appropriate consideration.

The Psoriasis Mandate

New Action Framework for Improved Standards of Psoriasis Care

The Psoriasis Mandate, an online petition, hosted on Psoriasis360.com has been developed in collaboration with the EUROSPSO and the EEWGHP to capture Europe-wide support for improved standards of care for people with psoriasis and the implementation of the Psoriasis White Paper recommendations.

  • The Psoriasis Mandate is open to anyone to sign
  • The results of the Psoriasis Mandate will be announced on World Psoriasis Day 2012 (29th October)

 

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